My son, Joshua, gets between 1800-2000 calories a day. At this time he is eating 2 meals by mouth, puréed like the below pictured meal, and 2 meals by g-tube, also puréed with extra liquid added so that it will go down by gravity, his preferred way of receiving his g-tube meals. He likes his g-tube meals to be over with quickly. Fast and furious! He doesn’t like being fed by g-tube, he is very ready to be done with meals that way, and even tries to knock the syringe out of my hand while I’m feeding him, often, so like I said we do it that way as quickly as possible. It’s something we just have to get done.
Joshua is really enjoying eating by mouth again. This boy has always just loved to eat! So when he stopped eating anything, after all of his surgery trauma, and wouldn’t let us put anything in his mouth, without it seeming to be painful, it was tough to see. To now see him enjoying and loving eating again, is absolutely AMAZING! I love to feed him and watch him enjoy his food. I love making his food. Yes, I feel chained to the blender many days, but I really do love it, and it brings me a lot of satisfaction. Satisfaction to see him enjoying it, getting healthier, and putting on more weight. I feel pride in all of that. I love that I can do something very tangible to better Joshua’s health. When you have a child with special needs, there are so many things that you just cannot make better for them, but when you can make a difference just by changing their diet, and you see the positive changes happening, it feels pretty incredible.
When Joshua first got out of the hospital, he weighed 49 pounds, and now 8 months later he is a whopping 58 pounds. That’s still small for a 12-year-old boy, but he is on his way. He has filled out in so many places! Our family sees it, and now others are noticing also.
While the journey to get to where we are has at times been incredibly difficult, I am so thankful for the fact that I have learned better ways to feed him and to get calories into him, that I didn’t know before.
So here is his breakfast today. Nothing fancy. It only took me about 15 minutes; prep to table. I will do a video soon of how I blend it, so you can see how easy it is.
2 eggs, cooked over easy
80 grams of fresh spinach, sautéed in bacon grease
1 tablespoon of Let’s Do Organic Creamed Coconut (coconut butter)